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DISABILITY
STEWARDSHIP

Stewardship

stew·â€‹ard·â€‹ship /ˈstoÍžoÉ™rdËŒSHip/

 

noun

 

1   : the careful and responsible management of something entrusted to one's care.

 

 
What is Disability Stewardship?
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A true partnership, Alyssa moves alongside folks who are often Disabled and/or chronically ill, providing trauma-informed, affirming, inclusive, and thoughtful peer-to-peer handholding, mentorship, and advocacy while navigating their lives and the spaces they inhabit during today’s polycrisis.

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This collection of services is a wellspring of supportive offerings, organically and tenderly cocooning each unique individual based on their specific and holistic needs, identities, circumstances, hopes, and dreams — and as those facets evolve along the way, together — through a Disability Justice framework and on Crip Time.*

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These include, but are not limited, to:

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  • Diagnoses or the diagnosis process 

  • Medical settings

  • Education and academia of all levels 

  • Family and friend life

  • All kinds of work

  • Activism

  • Grief

  • Personal goalsetting

  • Value alignment

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Alyssa draws on her decades of lived experience, her inner knowing, her education inside and outside of academia, and the extensive wisdom of her shared communities.

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Alyssa also supports those who work with individuals who are Disabled and/or chronically ill as these providers navigate their own growing edges, as well as their resourcing needs. Alyssa has completed ADA Coordinator certification. 

 

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What can our time together look like? 
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A few examples of the work Alyssa does:

  • Review medical results together to create a plan for next steps with your team. 

  • Script and navigate self advocacy in spaces designed without Disability or access in mind. 

  • Organize medical and/or Disability paperwork together. 

  • Support for aid and fundraising efforts.

  • Create and implement pods.

  • Make and hold space for the emotional experiences around and unique to Disability and chronic illness, like C-PTSD, grief, and mourning both physical and ambiguous loss. 

  • Help in navigating services, especially for those with Developmental Disability and their families.

  • Upskill toolkit for dealing with the burnout and axiological harm caused by living in a kyriarchal polycrisis.

 

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How does pricing work?
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Divesting from capitalism and the many ways it harms us while we attempt to survive in its grips is a daily and imperfect practice. 

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Alyssa seeks to reduce further harm to those most impacted by white supremacist capitalism, specifically those at the intersections of marginalizations: Black, Brown, and Indigenous queer and trans Disabled and/or chronically ill folks.

She is currently offering her services on a sliding scale based on each client’s self-assessed personal financial circumstances. Additionally, there are a limited number of free sessions available on a first come, first served basis. Please reach out to have a conversation about pricing that makes the most sense for your work together.

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*By ascribing to Crip Time, Alyssa and her clients mutually agree to honor each other’s bodyminds and capacities, understanding that symptoms and circumstances can change at a moment's notice and offering grace to one another is just as much an act of care as it is an act of disobedience toward so-called Father Time. 

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© 2025 MAKE LEMONADE WITH LUPUS 

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